Partnering with China Dolls to access rare disease patients

In Uncategorized by Pinky FadullonLeave a Comment

China DollsCollege students launched a "charity sale week" campaign to raise money for osteogenesis imperfecta (OI) patients in Shandong province, on Nov 6. Click here to read more on this article…

OI is a genetic connective tissue disease. Its clinical characteristics are fragile bones and bone deformities.

The patients are usually called "China Dolls" since their bones get frequent fractures and are much more vulnerable to collisions. It is estimated that there are about 100,000 OI patients in China.

Supported by the China Dolls Care and Support Association, the event involves hundreds of students from the University of Jinan, Shandong University of Finance and Economics, and Shandong Jianzhu University.

China Dolls Founder & President, Yi-Ou Wang will be speaking at the 2nd World Orphan Drug Congress USA and their need for orphan drugs in China despite the lack of orphan drug regulations in the country.

 

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