Video: Alpha-1 Antitrypsin Deficiency – at World #OrphanDrug Congress USA 2011

In Uncategorized by Caroline HornbyLeave a Comment

John Walsh of Alpha-1 Foundation on rare disease John W. Walsh, President & CEO of Alpha -1 Foundation, spoke at last year’s World Orphan Drug Congress USA on the topic ‘How participation in a Phase IV longitudinal study empowered me to to support research to cure Alpha-1 Antitrypsin Deficiency.’

Do you want to learn more about:

  • Creating a patient community
  • Partnering with the scientific and clinical community
  • Taking responsibility for equitable distribution and access to orphan drugs

If so, you need to check out the video below:

For more information on orphan drugs and rare diseases, check out the World Orphan Drug Congress USA. Remember, the earlier you book, the more you save, so register now to secure your seat!

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