This guest blog post was kindly provided by Rare Disease Report.
Recently, we talked with Stephanie Okey, General Manager of the Rare Disease Business Unit at Genzyme to discuss the recent improvements Genzyme has made in helping patients receive the best care possible. The company’s web patient portals provide patients with access to case managers 24/7 so that patients can obtain relevant information at a time that is convenient for them.
Genzyme have orphan drugs for several rare diseases (eg,MPS I, Gaucher, Pompe, Fabry, HoFH) and it is important that patients have support from the manufacturers of those drugs to make sure they receive the best care possible.
Watch the video above.
For more information about the patient portals, visit www.genzyme.com
For more information on rare diseases and orphan drugs, check out World Orphan Drug Congress USA. Rare Disease Report is a media partner of this event.
