If Treatments Won’t Come to You…: Patients and advocates in the development of treatments

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Patients and advocates have always been central to the rare disease and orphan drug community. What started as just advocacy though is now turning towards patient involvement and initiation of the development of treatments for rare disorders. As biotech and pharma clamour to get patients involved in their clinical trials and market development, patients and advocates have been taking things into their own hands. Here are a couple of projects that see patients and advocates taking on untraditional role when it comes to the development of orphan treatments.

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