Rare Disease Day

Share your Rare Disease Day stories here!

In Advocacy, Orphan Drug Congress, Orphan Drugs Live by Freya Smale

Rare Disease Day is just around the corner.

What is Rare Disease Day?

Rare Disease Day takes place on the last day of February each year.

The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives.

The campaign targets primarily the general public and also seeks to raise awareness amongst policy makers, public authorities, industry representatives, researchers, health professionals and anyone who has a genuine interest in rare diseases.” – Find out more by visiting the official website – http://www.rarediseaseday.org/

How can you get involved? 

There are events taking place all over the world! Find out what’s going on in your area here: http://www.rarediseaseday.org/events/world

Show your support with Handprints across Americas – Total Orphan Drugs has already added a handprint!

Keep up with all things Rare Disease Day on social media:

‘Like’ the Rare Disease Day Facebook page, view our timeline and participate in the conversation on Rare Disease Day

Follow Rare Disease Day on Twitter (@rarediseaseday). Re-tweet us and use the hashtag #raredisease

Watch the videos, comment and link to the many videos and upload your video to the Rare Disease Day channel via rarediseaseday.org

Upload your photo on the Joining Hands and Tell your Story pages!

Follow Rare Disease Day on Google+

Add your voice to the Rare Disease Day Thunderclap social media campaign that sends a post simultaneously from all who join!

Share your Rare Disease Day stories here! Simply email freya.smale@terrapinn.com

And that’s not all – World Orphan Drug Congress USA is celebrating Rare Disease Day by offering savings to all who register before March 4th. Simply quote RRD16 when asked. Register by clicking here.