IMS Health

#WODC USA Session preview: Using real-world data to find undiagnosed patients with rare diseases

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WORKSHOP C: USING REAL-WORLD DATA TO FIND UNDIAGNOSED PATIENTS WITH RARE DISEASES

WHO IS IT FOR?

A diverse audience of pharma, payers, providers, patient advocacy groups interested in:

–       Speeding up often lengthy time to a correct diagnosis

–       Getting novel ideas on how to build partnerships with providers and payers to maximize patient-finding strategies

WHAT ARE THE BENEFITS OF ATTENDING THIS WORKSHOP?

–       Explore ways in which real-world data (RWD) can be used to address the problem of under-diagnosis in rare diseases.

–       Discuss examples of RWD, focusing on key data assets in the US

–       Case studies to illustrate how these rich sources of data coupled with predictive analytics can be used to find undiagnosed patients

–       Case studies to show how RWD can be leveraged to inform on:

  • product development,
  • burden of illness assessments,
  • variations in care pathways,
  • healthcare utilization,
  • treatment effectiveness
  • disease epidemiology

Expect a highly interactive session with opportunity for audience members to ask questions and share their experience.

Workshop Agenda April 20, 9:00am – 12:00pm

9:00-9:10 Introduction – Using real-world data (RWD) to address the problem of under diagnosis in rare diseases

Kelly Peters, VP, Commercial Services, IMS Health

9:10-9:40 Rare diseases are not that rare – How the expansion of large-scale RWD is helping to transform the landscape of rare diseases

Michel Denarié, MBA , Senior Principal, RWE Solutions, IMS Health

9:40-10:30 How companies worldwide are breaking new ground in understanding rare diseases

Diana Wong, MBA, MSC, BSC, Principal, RWE Solutions, IMS Health

Leanne Li, MBA, Engagement Manager, RWE Solutions, IMS Health

10:30-10:40  Coffee Break (10 minutes)

10:40-11:20 Finding the needle in the haystack – Real-world data and predictive modelling helping to find patients with undiagnosed rare diseases

Nadea Leavitt, MSC, Engagement Manager, RWE Solutions, IMS Health

11:20-12:00 New engagement models with providers/ payers to increase rare disease treatments

Dr John Rigg, PHD , Principal and Head, Predictive Analytics, IMS Health

Kelly Peters, VP, Commercial Services, IMS Health

Sponsored by IMS Health 

Register your ticket now for you chance to get involved in this workshop!

World Orphan Drug Congress USA 2016

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