[Whitepaper] Unique Patient Challenges & Support Solutions in Rare Disease

In Advocacy, Orphan Drug Congress, Orphan Drugs Live, Whitepapers by Freya Smale

Atlantis Healthcare- Adherence Research

Living with any chronic health condition can be demanding, but rare diseases bring a unique set of challenges for patients. These can range from diagnosis difficulties to limited information and support, a lack of knowledge – even within medical services – and social stigma. Such challenges negatively impact patients and carers – preventing the best possible health outcomes from being achieved.

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To better understand the unmet support needs of such patients along with the solutions to address these, we asked people who have been diagnosed with a rare disease to share their stories, interviewed a pharmaceutical executive and health psychology researcher and reviewed the most recent and relevant adherence and self-management research in rare disease.

Download this whitepaper for:

  • Patient stories
  • Health psychology insights
  • Pharma insights
  • Predictors of non-adherence
  • Interventions to improve adherence
  • Clinical literature overview

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Whitepaper written by Vanessa Cooper, Health Psychologist & Jane Clatworthy, Health Psychologist of Atlantis Healthcare

We are thrilled to announce that Atlantis Healthcare are joining us as a sponsor at this year’s World Orphan Drug Congress USA 2016. Register today to meet them in D.C. on April 20-22.

World Orphan Drug Congress USA 2016