[[Whitepaper]] In the internet we trust? – Discerning quality rare disease information

In Advocacy, Orphan Drug Congress by Karina Kusova

Diagnosed with a rare disease?  Google it.  Receive a mess of returns, or perhaps nothing.

Those living with a rare condition and their families face numerous frustrations and have a multitude of unmet needs. The state of the internet in helping them on their journey leaves a lot to be desired. It may take them years to get an accurate diagnosis; physicians who understand their symptoms are few and far between; and understandable, accurate information is hard to find.

Learn more about how deeply these unmet need affects families and what types of successful solutions are available.

Download the whitepaper here >> 

Interested in learning more? Visit Rare Life Solutions at Booth 408 at World Orphan Drug Congress USA, April 19-21 at the Washington Marriott Wardman Park in Washington, DC.