Diagnosed with a rare disease? Google it. Receive a mess of returns, or perhaps nothing.
Those living with a rare condition and their families face numerous frustrations and have a multitude of unmet needs. The state of the internet in helping them on their journey leaves a lot to be desired. It may take them years to get an accurate diagnosis; physicians who understand their symptoms are few and far between; and understandable, accurate information is hard to find.
Learn more about how deeply these unmet need affects families and what types of successful solutions are available.
Interested in learning more? Visit Rare Life Solutions at Booth 408 at World Orphan Drug Congress USA, April 19-21 at the Washington Marriott Wardman Park in Washington, DC.