• [[ Whitepaper ]] Connecting With Rare Disease Patient Communities: Patient Advocates

    laureng Whitepapers April 19, 2018
  • [[Whitepaper ]] Disruptive Innovation in Rare Disease Markets

    laureng Whitepapers April 19, 2018
  • Choosing the Right Channel Strategy for Specialty Product Success

    Karina Kusova Clinical Development, Market Access, Orphan Drug Congress, Supply Chain & Manufacturing, Uncategorized, Whitepapers May 3, 2017
  • [Whitepaper] Challenging Conventional Patient Recruitment and Care Strategies for Rare Disease Studies

    Karina Kusova Clinical Development, Orphan Drug Congress, Uncategorized, Whitepapers April 10, 2017
  • [[whitepaper]] The New Reality: Maximizing Value in Rare Disease Launches

    Karina Kusova Clinical Development, Featured on App, Orphan Drug Congress, Uncategorized, Whitepapers April 6, 2017
  • What’s New in Rare Cancer Research? (Spoiler Alert: A Lot!)

    Karina Kusova Advocacy, Clinical Development, Market Access, Orphan Drug Congress, Orphan Drugs Live October 10, 2016

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Partnering & Investment

Partnering & Investment

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Maintaining a relationship based on trust: finding common goals with a KOL and its institution

In Orphan Drug Congress, Orphan Drugs Live, Partnering & Investment by Karina KusovaJanuary 23, 2017

In a multi-stakeholder industry such as that of Orphan Drugs, communication is vital to ensuring strong, effective working relationships. Charles Stark from Emmaus Lifesciences joined …

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Keynote announced – FDA Commissioner Dr. Robert Califf to tackle precision medicine focus

In Orphan Drug Congress, Partnering & Investment, Press Release by Freya SmaleJune 21, 2016

NEW YORK – Dr. Robert Califf, the recently appointed Commissioner of the U.S. Food and Drug Administration (FDA), will be presenting the opening address on …

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#WODC USA Session preview- Pricing & Reimbursement workshop

In Market Access, Orphan Drug Congress, Orphan Drugs Live, Partnering & Investment, Regulation & Government by Freya SmaleMarch 22, 2016

#WODC USA Session preview- Pricing & Reimbursement workshop Medical Marketing Economics (MME) has completed 125+ orphan price strategies in the last three years.  We will …

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#WODC USA Session preview: Achieving Commercial Success for Orphan Drugs

In Clinical Development, Partnering & Investment by Freya SmaleFebruary 26, 2016

#WODC USA Session preview: Achieving Commercial Success for Orphan Drugs Commercializing and launching orphan drugs is a vastly different challenge with different needs and requiring …

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Social Finance and Social Impact Bonds for financing rare disease research: The CWR-UK experience

In Orphan Drug Congress, Partnering & Investment by Freya SmaleFebruary 26, 2016

“Social Finance can create new economic engines for the repurposing of generic drugs, especially for rare diseases. There are needed repurposing opportunities that can yield low …

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Positive Collaboration – Alström Syndrome UK

In Advocacy, Orphan Drug Congress, Partnering & Investment, Uncategorized by Freya SmaleFebruary 24, 2016

Kerry Leeson-Beevers, National Development Manager at Alström Syndrome UK joined us at World Orphan Drug Congress Europe 2015 to provide insight into the role how positive collaboration …

Orphan Drug Congress, Orphan Drugs Live, Partnering & Investment / February 1, 2016

Calling all orphan drug biotech – Pitch & Partner!

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Announcing the 2016 World Orphan Drug Congress USA brochure

In Advocacy, Clinical Development, Market Access, Orphan Drug Congress, Partnering & Investment, Regulation & Government by Freya SmaleNovember 20, 2015

We are thrilled to announce the release of the 2016 World Orphan Drug Congress USA brochure! Following 5 years of success, the 6th Annual World Orphan …

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