• [[ Whitepaper ]] Connecting With Rare Disease Patient Communities: Patient Advocates

    laureng Whitepapers April 19, 2018
  • [[Whitepaper ]] Disruptive Innovation in Rare Disease Markets

    laureng Whitepapers April 19, 2018
  • Choosing the Right Channel Strategy for Specialty Product Success

    Karina Kusova Clinical Development, Market Access, Orphan Drug Congress, Supply Chain & Manufacturing, Uncategorized, Whitepapers May 3, 2017
  • [Whitepaper] Challenging Conventional Patient Recruitment and Care Strategies for Rare Disease Studies

    Karina Kusova Clinical Development, Orphan Drug Congress, Uncategorized, Whitepapers April 10, 2017
  • [[whitepaper]] The New Reality: Maximizing Value in Rare Disease Launches

    Karina Kusova Clinical Development, Featured on App, Orphan Drug Congress, Uncategorized, Whitepapers April 6, 2017
  • What’s New in Rare Cancer Research? (Spoiler Alert: A Lot!)

    Karina Kusova Advocacy, Clinical Development, Market Access, Orphan Drug Congress, Orphan Drugs Live October 10, 2016

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ALS Ice Bucket Challenge: Where is the Money Going?

In Advocacy by CecileSeptember 3, 20141 Comment

The ALS Association has received $106 million in Ice Bucket Challenge donations, but what exactly will the money be used for? The ALS Association has …

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The ALS Ice Bucket Challenge: Effectively Raising Global Awareness for an Orphan Disease

In Advocacy by CecileAugust 21, 20141 Comment

The ALS ice bucket challenge has succeeded in raising over $40 million for the ALS association, as well as immeasurable awareness for the rare disease …

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